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The Partners for Advancing Health Equity (P4HE) Resource Library is a virtual portal containing action-oriented health equity research, practice, and policies. The library aims to increase equity in health by offering free access to field-tested, evidence-informed and evidence-based programs strategies and high-quality research.
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- People with intellectual disabilities (IDs) experience extensive health disparities, including premature mortality and higher incidence of chronic disease. These inequities have been linked to reduced access to preventive health care for this population. We review the evidence as it relates to barriers and facilitators of effective implementation of health checks and screenings for people with…February 2024Chronic Disease
- Living with intersectional identities, having a disability, and being a member of a racial or ethnic minoritized group in the U.S., contributes to marginalization that may result in health disparities and health inequities. The purpose of this scoping review is to describe health research regarding adult racial/ethnic minoritized individuals in the U.S with intellectual and developmental…October 2023Policy and Practice
- Background:Persons with intellectual and developmental disabilities (IDD) suffer from stark, well-documented health and healthcare disparities, despite data indicating that the majority see a healthcare provider at least annually. Multiple surveys have indicated that over 90% of physicians feel they have inadequate knowledge and skill in caring for those with IDD. This has been recognized as a…September 2023Social/Structural Determinants
- This review is made up of two parts; the first part discussing intellectual disability (ID) in general, while the second part covers the pain associated with intellectual disability and the challenges and practical tips for the management of pain associated with (ID). Intellectual disability is characterized by deficits in general mental abilities, such as reasoning, problem solving, planning,…June 2023Policy and Practice
- DPC performs work in healthcare advocacy, expert policy analysis, and participatory research to help support the community. They strive to share the perspectives of people with disabilities and make Massachusetts more accessible and inclusive. This booklet shares DPC's top legislative priorities, budget priorities, and other bills that they support.January 2023Policy and Practice
- Background: One in four American adults reports having at least one disability. The COVID-19 pandemic has disproportionately impacted people with disabilities and widened already-existing health disparities and inequities. For many people with intellectual and developmental disabilities (IDD), these disparities are compounded by literacy limitations that make it challenging to access, understand…October 2022Policy and Practice
- People with disabilities face barriers when attempting to gain access to health care settings. Using qualitative analysis of three physician focus groups, we identified physical, communication, knowledge, structural, and attitudinal barriers to care for people with disabilities. Physicians reported feeling overwhelmed by the demands of practicing medicine in general and the requirements of the…October 2022
- Backgroundd/Deaf people suffer from inequitable access to healthcare and health information. This results in worse health literacy and poorer mental and physical health compared to hearing populations. Various interventions aimed at improving health equity for d/Deaf people have been documented but not systematically analyzed. The purpose of this systematic review is to obtain a global overview…August 2022Services & Programs, Education
- Background:Women with intellectual and developmental disabilities face poorer reproductive and pregnancy outcomes partially due to health care inequity. Our objective was to conduct a scoping review of reproductive and pregnancy related health care among women with intellectual and developmental disabilities.Methods:We systematically reviewed three databases for keywords pertaining to pregnancy,…May 2022Maternal/Child Health, Reproductive/Sexual Health
- BackgroundPeople with intellectual and developmental disabilities (IDD) appear to be at greater risk for severe outcomes from COVID-19. The roles of congregate living and skilled nursing care needs in this disparity are unclear.ObjectiveTo determine the impact of residential setting and level of skilled nursing care on COVID-19 outcomes for people receiving IDD services, compared to those not…April 2021COVID-19/Coronavirus
- Autism research has a race problem. Despite improvements in screening and diagnosis, autism continues to be underdiagnosed in Black and Hispanic children, and those who obtain a diagnosis often have limited access to support services. Racial disparities persist during the transition to adulthood, with autistic adults from racial and ethnic minority groups experiencing a number of challenges,…December 2020Mental/Behavioral Health
- Background: Globally, people with intellectual disabilities and/or autism experience health inequalities. Death occurs at a younger age and the prevalence of long-term morbidities is higher than in the general population. Despite this, their primary healthcare access rates are lower than the general population, their health needs are often unmet, and their views and experiences are frequently…July 2020Policy and Practice
- Care providers are key agents in the lives of individuals with an intellectual disability (ID). The quality of their support can be affected by manifestations of stigma. This scoping review was conducted to explore studies that provide indications of care providers’ stigmatization of people with ID. Methods: A structured search was made in four databases to identify relevant studies in English-…July 2019Isms and Phobias
- Background: Patient-centered care for people with disability requires effective communication and compliance with the Americans with Disabilities Act (ADA).Objective: To understand physicians’ perspectives on communication experiences with people with disability.Design: Twenty semi-structured individual interviews. Interview recordings were transcribed verbatim for analysis.Setting: Massachusetts…March 2019Policy and Practice
- Background: Equitable access to health services is a key ingredient in reaching health for persons with disabilities and other vulnerable groups. So far, research on access to health services in low- and middle-income countries has largely relied on self-reported survey data. Realizing that there may be substantial discrepancies between perceived and actual access, other methods are needed for…June 2018Services & Programs
- The objective of this study was to assess trends in health insurance coverage, health service utilization, and health care access among working-age adults with and without disabilities before and after full implementation of the Affordable Care Act (ACA), and to identify current disability-based disparities following full implementation of the ACA. The ACA was expected to have a disproportionate…November 2017Policy and Practice
- ObjectivesTo investigate mortality and its causes in adults over the age of 20 years with intellectual disability (ID).Design, setting and participantsRetrospective population-based standardised mortality of the ID and Comparison cohorts. The ID cohort comprised 42 204 individuals who registered for disability services with ID as a primary or secondary diagnosis from 2005 to 2011 in New South…February 2017Illness/Disease/Injury/Wellbeing
- Increasing attention is being paid to the impact of discrimination on the health of oppressed groups. In this chapter, we review the impact of the personal experience of discrimination on the health and well-being of people with intellectual disabilities. We begin by addressing conceptual and methodological issues facing research on links between discrimination and health. We then review: (1)…July 2015Social/Structural Determinants
- Even after passage of the Americans with Disability Act (ADA), persons with mental illnesses have difficulty finding a job and keeping it. In this study, the authors assessed employment outcomes among more than 1,000 individuals with a psychiatric disability who were unemployed at the start of the two-year study period. Those who received ADA accommodations not only worked more hours per month…September 2014Services & Programs
- Introduction: While there has been impressive progress in creating and improving community healthcare delivery systems that support people with intellectual and developmental disabilities (IDD), there is much more that can and should be done.Methods: This paper offers a review of healthcare delivery concepts on which new models are being developed, while also establishing an historical context.…July 2014Policy and Practice
- Historically, people with intellectual and developmental disabilities (IDD) have experienced health disparities related to several factors including: a lack of access to high quality medical care, inadequate preparation of health care providers to meet their needs, the social determinants of health (e.g., poverty, race and gender), and the failure to include people with IDD in public health…October 2013Policy and Practice
- BackgroundClinical practice guidelines are developed to improve the quality of healthcare. However, clinical guidelines may contribute to health inequities experienced by disadvantaged groups. This study uses an equity lens developed by the International Clinical Epidemiology Network (INCLEN) to examine how well clinical guidelines address inequities experienced by individuals with intellectual…May 2012Policy and Practice
- Good health significantly improves a person's quality of life. However, people with intellectual disabilities disproportionately have more health problems than the general population. Further complicating the matter is that people with more severe disabilities often cannot verbalize health complications they are experiencing, which leads to health problems being undiagnosed and untreated. It is…September 2010Illness/Disease/Injury/Wellbeing
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