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The Partners for Advancing Health Equity (P4HE) Resource Library is a virtual portal containing action-oriented health equity research, practice, and policies. The library aims to increase equity in health by offering free access to field-tested, evidence-informed and evidence-based programs strategies and high-quality research.
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- Training needs of professionals who serve people with IDD and mental health needs and their familiesUp to 40% of people with intellectual and developmental disabilities (IDD) experience co-occurring mental illness. Despite the prevalence of mental health needs among people with IDD, little is known about the best approaches for supporting the needs of people with IDD and co-occurring mental health challenges and their families. This uncertainty has led to the dependence on outdated and…November 2019Policy and Practice
- Over the past 20 years, services and supports for people with intellectual and developmental disabilities (IDD) have changed significantly. The vast majority of adults with IDD now live in home and community-based settings rather than institutions. Data are collected on the IDD population's use of public programs (e.g., Medicaid and Social Security), their places of residence, and their…September 2019Services & Programs
- Care providers are key agents in the lives of individuals with an intellectual disability (ID). The quality of their support can be affected by manifestations of stigma. This scoping review was conducted to explore studies that provide indications of care providers’ stigmatization of people with ID. Methods: A structured search was made in four databases to identify relevant studies in English-…July 2019Isms and Phobias
- Transitioning from high school to the next step can be both exciting and daunting. Do you remember participating in school activities, getting that first job (Staples and the ballpark concession stand for us!), studying for the SAT, and filling out college applications—all in the hopes of creating the future you imagined after high school? Maybe you waited in anticipation for a college acceptance…May 2019Education
- Practitioners in maternal and child health (MCH) make it a priority to solve complex public health problems facing women, children, adolescents, and their families across the life course. The field of MCH has made significant advances in the past century, including the expansion of family planning methods and services, the eradication of once-common deadly diseases such as polio, and innovations…May 2019Maternal/Child Health
- Patients with a history of intellectual disability (ID) have been noted to experience pain more frequently and to a higher degree than the general population. Previously referred to as “mental retardation,” ID occurs in approximately 1% of the population. A diagnosis of ID is generally based upon the presence of an intelligence quotient score below a specific level, along with noted impairments…April 2019Illness/Disease/Injury/Wellbeing
- Background: Patient-centered care for people with disability requires effective communication and compliance with the Americans with Disabilities Act (ADA).Objective: To understand physicians’ perspectives on communication experiences with people with disability.Design: Twenty semi-structured individual interviews. Interview recordings were transcribed verbatim for analysis.Setting: Massachusetts…March 2019Policy and Practice
- The Office of Developmental Primary Care facilitated two discussion groups in order to learn more about the experiences of people with disabilities and their families in accessing the health care system. Discussion topics included communication, personal life values, changes in or loss of function, medical decision-making, and end of life care conversations. Our ultimate purpose was to uncover…January 2019
- Background: Equitable access to health services is a key ingredient in reaching health for persons with disabilities and other vulnerable groups. So far, research on access to health services in low- and middle-income countries has largely relied on self-reported survey data. Realizing that there may be substantial discrepancies between perceived and actual access, other methods are needed for…June 2018Services & Programs
- Objective: To delineate the factors inherent in caring for patients with intellectual and developmental disabilities (IDD) that lead to complexity and to provide perspectives and techniques mapped to the phases of the clinical encounter.Sources of information: The authors of the physical health section of the 2018 Canadian consensus guidelines on the primary care of adults with IDD consisted of…April 2018Policy and Practice
- Objective: To update the 2011 Canadian guidelines for primary care of adults with intellectual and developmental disabilities (IDD).Methods: Family physicians and other health professionals experienced in the care of people with IDD reviewed and synthesized recent empirical, ecosystem, expert, and experiential knowledge. A system was developed to grade the strength of recommendations.…April 2018Policy and Practice
- Over 600,000 people are released from state and federal prisons every year. They reenter their communities with a set of complex needs and challenging vulnerabilities, including chronic physical and behavioral health conditions, unstable housing, and impediments to finding and retaining quality jobs. Many struggle to reintegrate and a large share are rearrested or reincarcerated within a…March 2018Criminal History, Services & Programs
- The 2018 AAMC Social Justice Behind and Beyond the Bars: Criminal Justice Health and Academic Medicine Community Engagement Toolkit features videos, resources, and discussion questions that community members and academic health centers can use to:Understand the critical issues in correctional healthUnderstand the role of policy and the social determinants of health in creating and perpetuating…January 2018Environment/Context
- The objective of this study was to assess trends in health insurance coverage, health service utilization, and health care access among working-age adults with and without disabilities before and after full implementation of the Affordable Care Act (ACA), and to identify current disability-based disparities following full implementation of the ACA. The ACA was expected to have a disproportionate…November 2017Policy and Practice
- Massachusetts state law includes a tremendous opportunity for city and town disability commissions to make their communities more accessible and more inclusive of people with disabilities. By persuading local government to adopt section 22G, commissions get access to the money collected from fines when individuals park illegally in accessible parking spaces (previously known as Handicapped…June 2017Advocacy
- Too many special education students are at risk of leaving high school unprepared for the future. That’s my conclusion after making a deep dive into their backgrounds and experiences for a national study.Consider these facts:Special education students are half as likely as their peers to take college entrance tests such as the SAT.They are less likely to have paid work experience, despite…May 2017Education
- ObjectivesTo investigate mortality and its causes in adults over the age of 20 years with intellectual disability (ID).Design, setting and participantsRetrospective population-based standardised mortality of the ID and Comparison cohorts. The ID cohort comprised 42 204 individuals who registered for disability services with ID as a primary or secondary diagnosis from 2005 to 2011 in New South…February 2017Illness/Disease/Injury/Wellbeing
- Increasing attention is being paid to the impact of discrimination on the health of oppressed groups. In this chapter, we review the impact of the personal experience of discrimination on the health and well-being of people with intellectual disabilities. We begin by addressing conceptual and methodological issues facing research on links between discrimination and health. We then review: (1)…July 2015Social/Structural Determinants
- Protection and Affordable Care Act (PPACA), also known as Obamacare, has stimulated extensive debate over the way in which healthcare is financed, and whether or not the costs of healthcare are sustainable. Among publicly funded healthcare in the US, Medicaid and Medicare are primary sources of funding. In federal fiscal year 2012, Medicaid spending on acute health exceeded $275.4 billion, while…September 2014Policy and Practice
- Even after passage of the Americans with Disability Act (ADA), persons with mental illnesses have difficulty finding a job and keeping it. In this study, the authors assessed employment outcomes among more than 1,000 individuals with a psychiatric disability who were unemployed at the start of the two-year study period. Those who received ADA accommodations not only worked more hours per month…September 2014Services & Programs
- Introduction: While there has been impressive progress in creating and improving community healthcare delivery systems that support people with intellectual and developmental disabilities (IDD), there is much more that can and should be done.Methods: This paper offers a review of healthcare delivery concepts on which new models are being developed, while also establishing an historical context.…July 2014Policy and Practice
- Historically, people with intellectual and developmental disabilities (IDD) have experienced health disparities related to several factors including: a lack of access to high quality medical care, inadequate preparation of health care providers to meet their needs, the social determinants of health (e.g., poverty, race and gender), and the failure to include people with IDD in public health…October 2013Policy and Practice
- BackgroundClinical practice guidelines are developed to improve the quality of healthcare. However, clinical guidelines may contribute to health inequities experienced by disadvantaged groups. This study uses an equity lens developed by the International Clinical Epidemiology Network (INCLEN) to examine how well clinical guidelines address inequities experienced by individuals with intellectual…May 2012Policy and Practice
- Good health significantly improves a person's quality of life. However, people with intellectual disabilities disproportionately have more health problems than the general population. Further complicating the matter is that people with more severe disabilities often cannot verbalize health complications they are experiencing, which leads to health problems being undiagnosed and untreated. It is…September 2010Illness/Disease/Injury/Wellbeing
- Disabled people represent between 10% and 20% of the world’s population, depending on the definitions adopted. They are disproportionately poor, and have historically experienced diverse forms of social exclusion. The rise of the disability rights movement, the establishment of disability discrimination legislation in many countries, and the advent of the UN Convention on the Rights of Persons…November 2009Postsecondary Education
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