Who defines MY quality of life?: Perspectives from disability-advocates and caregivers

Individual Author(s) / Organizational Author
Crisp-Cooper, Melissa
Savin, Katie
Mejía, Patricia
Cummins, Jo
Publisher
Office of Developmental Primary CareDepartment of Family and Community Medicine University of California, San Francisco
Date
January 2019
Abstract / Description

The Office of Developmental Primary Care facilitated two discussion groups in order to learn more about the experiences of people with disabilities and their families in accessing the health care system. Discussion topics included communication, personal life values, changes in or loss of function, medical decision-making, and end of life care conversations. Our ultimate purpose was to uncover how these interactions impact patient care, including goals of care and end of life conversations. (author introduction)

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Artifact Type
Reference Type
Priority Population
P4HE Authored
No