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The Partners for Advancing Health Equity (P4HE) Resource Library is a virtual portal containing action-oriented health equity research, practice, and policies. The library aims to increase equity in health by offering free access to field-tested, evidence-informed and evidence-based programs strategies and high-quality research.
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- The Americans with Disabilities Act became law in 1990 to help remove barriers in the workplace and in daily life for people with disabilities. As we celebrate the 30th anniversary of the law, let’s examine the barriers to employment for those with disabilities. In July 2019, 47.5 percent of people age 16 and older with a disability who were not employed (either unemployed or not in the labor…July 2020Policy and Practice
- For many people who have a disability or a disabling condition caused by an illness or injury, it can be difficult to find an employer who not only strives to create an environment and policies that ensure they are supported, but also fosters a culture in which the differences of its employees are sincerely valued. An important piece of this work is to reach out to employees about their…July 2020Services & Programs
- This episode of On the Evidence focuses on transition-age youth (ages 14 to 24) who have disabilities and must navigate a complex and fragmented system to access benefits and support services. Recent research suggests that it is possible to intervene with youth with disabilities and smooth the transition to adulthood, especially by providing well-designed, customized supports to specific…July 2020Services & Programs, Opportunity Youth
- Background: Globally, people with intellectual disabilities and/or autism experience health inequalities. Death occurs at a younger age and the prevalence of long-term morbidities is higher than in the general population. Despite this, their primary healthcare access rates are lower than the general population, their health needs are often unmet, and their views and experiences are frequently…July 2020Policy and Practice
- Measures taken in response to the COVID-19 pandemic in the United States have had sudden and profound effects on the labor market, with millions of American workers being laid off since March 2020. The national unemployment rate increased from 3.5 percent in February 2020 to 14.7 percent in April 2020, the highest rate since the Great Depression in the 1930s. Experts believe that the sudden and…May 2020COVID-19/Coronavirus, Environment/Context
- Training needs of professionals who serve people with IDD and mental health needs and their familiesUp to 40% of people with intellectual and developmental disabilities (IDD) experience co-occurring mental illness. Despite the prevalence of mental health needs among people with IDD, little is known about the best approaches for supporting the needs of people with IDD and co-occurring mental health challenges and their families. This uncertainty has led to the dependence on outdated and…November 2019Policy and Practice
- Over the past 20 years, services and supports for people with intellectual and developmental disabilities (IDD) have changed significantly. The vast majority of adults with IDD now live in home and community-based settings rather than institutions. Data are collected on the IDD population's use of public programs (e.g., Medicaid and Social Security), their places of residence, and their…September 2019Services & Programs
- Care providers are key agents in the lives of individuals with an intellectual disability (ID). The quality of their support can be affected by manifestations of stigma. This scoping review was conducted to explore studies that provide indications of care providers’ stigmatization of people with ID. Methods: A structured search was made in four databases to identify relevant studies in English-…July 2019Isms and Phobias
- Transitioning from high school to the next step can be both exciting and daunting. Do you remember participating in school activities, getting that first job (Staples and the ballpark concession stand for us!), studying for the SAT, and filling out college applications—all in the hopes of creating the future you imagined after high school? Maybe you waited in anticipation for a college acceptance…May 2019Education
- Patients with a history of intellectual disability (ID) have been noted to experience pain more frequently and to a higher degree than the general population. Previously referred to as “mental retardation,” ID occurs in approximately 1% of the population. A diagnosis of ID is generally based upon the presence of an intelligence quotient score below a specific level, along with noted impairments…April 2019Illness/Disease/Injury/Wellbeing
- Background: Patient-centered care for people with disability requires effective communication and compliance with the Americans with Disabilities Act (ADA).Objective: To understand physicians’ perspectives on communication experiences with people with disability.Design: Twenty semi-structured individual interviews. Interview recordings were transcribed verbatim for analysis.Setting: Massachusetts…March 2019Policy and Practice
- The Office of Developmental Primary Care facilitated two discussion groups in order to learn more about the experiences of people with disabilities and their families in accessing the health care system. Discussion topics included communication, personal life values, changes in or loss of function, medical decision-making, and end of life care conversations. Our ultimate purpose was to uncover…January 2019
- Background: Equitable access to health services is a key ingredient in reaching health for persons with disabilities and other vulnerable groups. So far, research on access to health services in low- and middle-income countries has largely relied on self-reported survey data. Realizing that there may be substantial discrepancies between perceived and actual access, other methods are needed for…June 2018Services & Programs
- Objective: To delineate the factors inherent in caring for patients with intellectual and developmental disabilities (IDD) that lead to complexity and to provide perspectives and techniques mapped to the phases of the clinical encounter.Sources of information: The authors of the physical health section of the 2018 Canadian consensus guidelines on the primary care of adults with IDD consisted of…April 2018Policy and Practice
- Objective: To update the 2011 Canadian guidelines for primary care of adults with intellectual and developmental disabilities (IDD).Methods: Family physicians and other health professionals experienced in the care of people with IDD reviewed and synthesized recent empirical, ecosystem, expert, and experiential knowledge. A system was developed to grade the strength of recommendations.…April 2018Policy and Practice
- The objective of this study was to assess trends in health insurance coverage, health service utilization, and health care access among working-age adults with and without disabilities before and after full implementation of the Affordable Care Act (ACA), and to identify current disability-based disparities following full implementation of the ACA. The ACA was expected to have a disproportionate…November 2017Policy and Practice
- Massachusetts state law includes a tremendous opportunity for city and town disability commissions to make their communities more accessible and more inclusive of people with disabilities. By persuading local government to adopt section 22G, commissions get access to the money collected from fines when individuals park illegally in accessible parking spaces (previously known as Handicapped…June 2017Advocacy
- Too many special education students are at risk of leaving high school unprepared for the future. That’s my conclusion after making a deep dive into their backgrounds and experiences for a national study.Consider these facts:Special education students are half as likely as their peers to take college entrance tests such as the SAT.They are less likely to have paid work experience, despite…May 2017Education
- ObjectivesTo investigate mortality and its causes in adults over the age of 20 years with intellectual disability (ID).Design, setting and participantsRetrospective population-based standardised mortality of the ID and Comparison cohorts. The ID cohort comprised 42 204 individuals who registered for disability services with ID as a primary or secondary diagnosis from 2005 to 2011 in New South…February 2017Illness/Disease/Injury/Wellbeing
- Increasing attention is being paid to the impact of discrimination on the health of oppressed groups. In this chapter, we review the impact of the personal experience of discrimination on the health and well-being of people with intellectual disabilities. We begin by addressing conceptual and methodological issues facing research on links between discrimination and health. We then review: (1)…July 2015Social/Structural Determinants
- Protection and Affordable Care Act (PPACA), also known as Obamacare, has stimulated extensive debate over the way in which healthcare is financed, and whether or not the costs of healthcare are sustainable. Among publicly funded healthcare in the US, Medicaid and Medicare are primary sources of funding. In federal fiscal year 2012, Medicaid spending on acute health exceeded $275.4 billion, while…September 2014Policy and Practice
- Even after passage of the Americans with Disability Act (ADA), persons with mental illnesses have difficulty finding a job and keeping it. In this study, the authors assessed employment outcomes among more than 1,000 individuals with a psychiatric disability who were unemployed at the start of the two-year study period. Those who received ADA accommodations not only worked more hours per month…September 2014Services & Programs
- Introduction: While there has been impressive progress in creating and improving community healthcare delivery systems that support people with intellectual and developmental disabilities (IDD), there is much more that can and should be done.Methods: This paper offers a review of healthcare delivery concepts on which new models are being developed, while also establishing an historical context.…July 2014Policy and Practice
- Historically, people with intellectual and developmental disabilities (IDD) have experienced health disparities related to several factors including: a lack of access to high quality medical care, inadequate preparation of health care providers to meet their needs, the social determinants of health (e.g., poverty, race and gender), and the failure to include people with IDD in public health…October 2013Policy and Practice
- BackgroundClinical practice guidelines are developed to improve the quality of healthcare. However, clinical guidelines may contribute to health inequities experienced by disadvantaged groups. This study uses an equity lens developed by the International Clinical Epidemiology Network (INCLEN) to examine how well clinical guidelines address inequities experienced by individuals with intellectual…May 2012Policy and Practice
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