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The Partners for Advancing Health Equity (P4HE) Resource Library is a virtual portal containing action-oriented health equity research, practice, and policies. The library aims to increase equity in health by offering free access to field-tested, evidence-informed and evidence-based programs strategies and high-quality research.
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- An intellectual-developmental disorder shouldn’t be a barrier to receiving personalized and effective support. In addition to our e-learning courses, webinars, and materials, we are the sole developer and distributor of the Health Risk Screening Tool (HRST), the most widely used and validated health risk screening tool for those with intellectual and developmental disabilities. (author…January 2023Policy and Practice
- Practicing clinicians are calling for it to be “mandatory for all medical students.” The Curriculum in IDD Healthcare (CIDDH) teaches the fundamentals of IDD healthcare, providing learners with pertinent, practical information that can be used immediately in their practices to improve outcomes, reduce suffering, and prevent unnecessary death in their patients with intellectual and developmental…January 2023Services & Programs
- People with disabilities represent a large and often under-recognized minority population in the United States. Historically, negative healthcare provider perceptions and limited critical social determinants of health (including community living and education) have resulted in inequitable healthcare and access for this vulnerable group. Within the last 40 years, there have been some advances in…November 2022Social/Structural Determinants
- There are numerous health inequities for people with intellectual and developmental disabilities (IDD). They experience lower rates of preventive screening; higher rates of obesity, diabetes, and cardiovascular disease; lower life expectancy; and higher rates of pregnancy complications. If that’s not enough, they have been at nearly six times greater risk of dying from COVID-19.What is driving…October 2022Illness/Disease/Injury/Wellbeing, Social/Structural Determinants
- This year’s National Disability Employment Awareness Month (NDEAM) theme, Disability: Part of the Equity Equation, led us to reflect on our own workplace and how Mathematica incorporates diverse voices from people with disabilities throughout our organization. We approached this from two different perspectives. Naomi is an employee with a disability who chose to work at Mathematica in part…October 2022Environment/Context
- Background: One in four American adults reports having at least one disability. The COVID-19 pandemic has disproportionately impacted people with disabilities and widened already-existing health disparities and inequities. For many people with intellectual and developmental disabilities (IDD), these disparities are compounded by literacy limitations that make it challenging to access, understand…October 2022Policy and Practice
- This article in the Boston Globe reports on a study which discovered specific challenges that people with disabilities face when trying to access healthcare. #P4HEwebinarMarch2023October 2022
- People with disabilities face barriers when attempting to gain access to health care settings. Using qualitative analysis of three physician focus groups, we identified physical, communication, knowledge, structural, and attitudinal barriers to care for people with disabilities. Physicians reported feeling overwhelmed by the demands of practicing medicine in general and the requirements of the…October 2022
- Backgroundd/Deaf people suffer from inequitable access to healthcare and health information. This results in worse health literacy and poorer mental and physical health compared to hearing populations. Various interventions aimed at improving health equity for d/Deaf people have been documented but not systematically analyzed. The purpose of this systematic review is to obtain a global overview…August 2022Services & Programs, Education
- Background:Women with intellectual and developmental disabilities face poorer reproductive and pregnancy outcomes partially due to health care inequity. Our objective was to conduct a scoping review of reproductive and pregnancy related health care among women with intellectual and developmental disabilities.Methods:We systematically reviewed three databases for keywords pertaining to pregnancy,…May 2022Maternal/Child Health, Reproductive/Sexual Health
- The COVID-19 pandemic amplified some of the undeniable and unacceptable inequities in our society, and it finally feels like there is meaningful momentum to address the injustice of health inequities. Although we, the co-authors of this blog, welcome this incredibly important collective action to enhance health equity, as disabled people ourselves, we fear that current equity-focused work largely…April 2022Advocacy, Health Reform
- The transition from school to postsecondary life can be difficult. Research shows that youth with disabilities are less likely than their nondisabled peers to successfully make this transition. The disparities in outcomes are larger for youth with disabilities who are from racial and ethnic minority groups. Minority youth are also more likely to be disconnected. This Minority Youth and…April 2022Early Childhood Education, Social Environment
- Incorporated in 1992, the Developmental Disabilities Nurses Association (DDNA) is a 501(c)(3) not-for-profit nursing specialty organization committed to advocacy, education, and support for nurses who provide services to persons with developmental disabilities (DD). (author introduction)January 2022Policy and Practice
- The COVID-19 pandemic shined a light on the inequities of the healthcare system that exist for people with intellectual and/or developmental disabilities. For many people with IDD and caregivers, receiving care in a hospital setting has always been a challenging experience. We know that training in this area is lacking. Education and experiential learning for healthcare professionals is essential…December 2021Policy and Practice
- The 2020-21 school year demanded something brand new—shaped by the needs of students, families and educators facing unprecedented challenges. In this crisis, existing inequities grew worse. They required targeted solutions and a reimagining of the status quo. The best solutions were designed to help students and families least supported by the system. And those solutions proved widely…October 2021Education, Ableism
- Definition and prevalence of Intellectual DisabilityIntellectual disability (ID) is characterized by significant limitations both in intellectual functioning (e.g. reasoning, learning, problem solving) and in adaptive behavior in a range of everyday social and practical skills. This disability originates before the age of 18 years. Etiologies of ID include, but are not restricted to: cerebral…July 2021Illness/Disease/Injury/Wellbeing
- BackgroundPeople with intellectual and developmental disabilities (IDD) appear to be at greater risk for severe outcomes from COVID-19. The roles of congregate living and skilled nursing care needs in this disparity are unclear.ObjectiveTo determine the impact of residential setting and level of skilled nursing care on COVID-19 outcomes for people receiving IDD services, compared to those not…April 2021COVID-19/Coronavirus
- Autism research has a race problem. Despite improvements in screening and diagnosis, autism continues to be underdiagnosed in Black and Hispanic children, and those who obtain a diagnosis often have limited access to support services. Racial disparities persist during the transition to adulthood, with autistic adults from racial and ethnic minority groups experiencing a number of challenges,…December 2020Mental/Behavioral Health
- This special webinar series explores how climate change affects low-income people, Black, Indigenous, Latinx, people of color and other people who are at increased risk due to climate change. In addition, presenters will suggest what is needed to prevent illness, disability, and death from climate change-related conditions among these and other Connecticut residents. Each webinar was held for one…December 2020
- The Americans with Disabilities Act became law in 1990 to help remove barriers in the workplace and in daily life for people with disabilities. As we celebrate the 30th anniversary of the law, let’s examine the barriers to employment for those with disabilities. In July 2019, 47.5 percent of people age 16 and older with a disability who were not employed (either unemployed or not in the labor…July 2020Policy and Practice
- For many people who have a disability or a disabling condition caused by an illness or injury, it can be difficult to find an employer who not only strives to create an environment and policies that ensure they are supported, but also fosters a culture in which the differences of its employees are sincerely valued. An important piece of this work is to reach out to employees about their…July 2020Services & Programs
- This episode of On the Evidence focuses on transition-age youth (ages 14 to 24) who have disabilities and must navigate a complex and fragmented system to access benefits and support services. Recent research suggests that it is possible to intervene with youth with disabilities and smooth the transition to adulthood, especially by providing well-designed, customized supports to specific…July 2020Services & Programs, Opportunity Youth
- Background: Globally, people with intellectual disabilities and/or autism experience health inequalities. Death occurs at a younger age and the prevalence of long-term morbidities is higher than in the general population. Despite this, their primary healthcare access rates are lower than the general population, their health needs are often unmet, and their views and experiences are frequently…July 2020Policy and Practice
- Measures taken in response to the COVID-19 pandemic in the United States have had sudden and profound effects on the labor market, with millions of American workers being laid off since March 2020. The national unemployment rate increased from 3.5 percent in February 2020 to 14.7 percent in April 2020, the highest rate since the Great Depression in the 1930s. Experts believe that the sudden and…May 2020COVID-19/Coronavirus, Environment/Context
- As society we put a lot of prisons in rural communities to create jobs. the prison is largely staffed by people who live in these rural communities. As people travel from their homes to work, to stores and to church, it's likely that SARS-CoV-2 will travel along with them. Rural communities don't have the medical services to deal with what is coming. (author introduction)May 2020COVID-19/Coronavirus
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