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The Partners for Advancing Health Equity (P4HE) Resource Library is a virtual portal containing action-oriented health equity research, practice, and policies. The library aims to increase equity in health by offering free access to field-tested, evidence-informed and evidence-based programs strategies and high-quality research.
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- An intellectual-developmental disorder shouldn’t be a barrier to receiving personalized and effective support. In addition to our e-learning courses, webinars, and materials, we are the sole developer and distributor of the Health Risk Screening Tool (HRST), the most widely used and validated health risk screening tool for those with intellectual and developmental disabilities. (author…January 2023Policy and Practice
- Practicing clinicians are calling for it to be “mandatory for all medical students.” The Curriculum in IDD Healthcare (CIDDH) teaches the fundamentals of IDD healthcare, providing learners with pertinent, practical information that can be used immediately in their practices to improve outcomes, reduce suffering, and prevent unnecessary death in their patients with intellectual and developmental…January 2023Services & Programs
- People with disabilities represent a large and often under-recognized minority population in the United States. Historically, negative healthcare provider perceptions and limited critical social determinants of health (including community living and education) have resulted in inequitable healthcare and access for this vulnerable group. Within the last 40 years, there have been some advances in…November 2022Social/Structural Determinants
- In a finding that challenges the notion that immigrants are freeloaders in the American health care system, a new study shows they are paying a lot more through health care premiums and related taxes than they actually use in care. In fact, the amount that immigrants pay in makes up for some of the amount of health care that non-immigrants use in excess of what they pay. “Some…November 2022Services & Programs
- There are numerous health inequities for people with intellectual and developmental disabilities (IDD). They experience lower rates of preventive screening; higher rates of obesity, diabetes, and cardiovascular disease; lower life expectancy; and higher rates of pregnancy complications. If that’s not enough, they have been at nearly six times greater risk of dying from COVID-19.What is driving…October 2022Illness/Disease/Injury/Wellbeing, Social/Structural Determinants
- This year’s National Disability Employment Awareness Month (NDEAM) theme, Disability: Part of the Equity Equation, led us to reflect on our own workplace and how Mathematica incorporates diverse voices from people with disabilities throughout our organization. We approached this from two different perspectives. Naomi is an employee with a disability who chose to work at Mathematica in part…October 2022Environment/Context
- Background: One in four American adults reports having at least one disability. The COVID-19 pandemic has disproportionately impacted people with disabilities and widened already-existing health disparities and inequities. For many people with intellectual and developmental disabilities (IDD), these disparities are compounded by literacy limitations that make it challenging to access, understand…October 2022Policy and Practice
- This article in the Boston Globe reports on a study which discovered specific challenges that people with disabilities face when trying to access healthcare. #P4HEwebinarMarch2023October 2022
- People with disabilities face barriers when attempting to gain access to health care settings. Using qualitative analysis of three physician focus groups, we identified physical, communication, knowledge, structural, and attitudinal barriers to care for people with disabilities. Physicians reported feeling overwhelmed by the demands of practicing medicine in general and the requirements of the…October 2022
- Backgroundd/Deaf people suffer from inequitable access to healthcare and health information. This results in worse health literacy and poorer mental and physical health compared to hearing populations. Various interventions aimed at improving health equity for d/Deaf people have been documented but not systematically analyzed. The purpose of this systematic review is to obtain a global overview…August 2022Services & Programs, Education
- Background:Women with intellectual and developmental disabilities face poorer reproductive and pregnancy outcomes partially due to health care inequity. Our objective was to conduct a scoping review of reproductive and pregnancy related health care among women with intellectual and developmental disabilities.Methods:We systematically reviewed three databases for keywords pertaining to pregnancy,…May 2022Maternal/Child Health, Reproductive/Sexual Health
- The COVID-19 pandemic amplified some of the undeniable and unacceptable inequities in our society, and it finally feels like there is meaningful momentum to address the injustice of health inequities. Although we, the co-authors of this blog, welcome this incredibly important collective action to enhance health equity, as disabled people ourselves, we fear that current equity-focused work largely…April 2022Advocacy, Health Reform
- The transition from school to postsecondary life can be difficult. Research shows that youth with disabilities are less likely than their nondisabled peers to successfully make this transition. The disparities in outcomes are larger for youth with disabilities who are from racial and ethnic minority groups. Minority youth are also more likely to be disconnected. This Minority Youth and…April 2022Early Childhood Education, Social Environment
- The CMS Framework for Health Equity provides a strong foundation for our work as a leader and trusted partner dedicated to advancing health equity, expanding coverage, and improving health outcomes. This includes strengthening our infrastructure for assessment, creating synergies across the health care system to drive structural change, and identifying and working together to eliminate barriers…April 2022Community-rooted/Participatory Research, Services & Programs
- The Accountable Health Communities Model addressed a critical gap between clinical care and community services in the current health care delivery system by testing whether systematically identifying and addressing the health-related social needs of Medicare and Medicaid beneficiaries through screening, referral, and community navigation services will impact health care costs and reduce health…April 2022Medicaid, Services & Programs, Social Environment
- For decades, Medicaid has provided virtually no-cost coverage to millions of Americans priced out of the private insurance market. Still, state legislators, policy analysts, and the popular press continue to question Medicaid’s value, particularly in relation to private coverage. Twelve states have not expanded Medicaid coverage under the Affordable Care Act (ACA) framework despite the offer of…March 2022Medicaid
- Incorporated in 1992, the Developmental Disabilities Nurses Association (DDNA) is a 501(c)(3) not-for-profit nursing specialty organization committed to advocacy, education, and support for nurses who provide services to persons with developmental disabilities (DD). (author introduction)January 2022Policy and Practice
- The COVID-19 pandemic shined a light on the inequities of the healthcare system that exist for people with intellectual and/or developmental disabilities. For many people with IDD and caregivers, receiving care in a hospital setting has always been a challenging experience. We know that training in this area is lacking. Education and experiential learning for healthcare professionals is essential…December 2021Policy and Practice
- The 2020-21 school year demanded something brand new—shaped by the needs of students, families and educators facing unprecedented challenges. In this crisis, existing inequities grew worse. They required targeted solutions and a reimagining of the status quo. The best solutions were designed to help students and families least supported by the system. And those solutions proved widely…October 2021Education, Ableism
- Importance: It is unclear how the COVID-19 pandemic and its associated economic downturn have affected insurance coverage and disparities in access to health care among low-income families and people of color in states that have and have not expanded Medicaid. Objective: To determine changes in insurance coverage and disparities in access to health care among low-income families and people…August 2021COVID-19/Coronavirus, Medicaid
- Definition and prevalence of Intellectual DisabilityIntellectual disability (ID) is characterized by significant limitations both in intellectual functioning (e.g. reasoning, learning, problem solving) and in adaptive behavior in a range of everyday social and practical skills. This disability originates before the age of 18 years. Etiologies of ID include, but are not restricted to: cerebral…July 2021Illness/Disease/Injury/Wellbeing
- Medicaid has a long history of serving pregnant women, but many women are not eligible for Medicaid before pregnancy or after sixty days postpartum. We used data for new mothers with Medicaid-covered prenatal care in 2015–18 from forty-three states participating in the Pregnancy Risk Assessment Monitoring System (PRAMS) to describe patterns of perinatal uninsurance and health outcomes of women…April 2021Illness/Disease/Injury/Wellbeing, Maternal/Child Health, Depression, Medicaid
- BackgroundPeople with intellectual and developmental disabilities (IDD) appear to be at greater risk for severe outcomes from COVID-19. The roles of congregate living and skilled nursing care needs in this disparity are unclear.ObjectiveTo determine the impact of residential setting and level of skilled nursing care on COVID-19 outcomes for people receiving IDD services, compared to those not…April 2021COVID-19/Coronavirus
- Autism research has a race problem. Despite improvements in screening and diagnosis, autism continues to be underdiagnosed in Black and Hispanic children, and those who obtain a diagnosis often have limited access to support services. Racial disparities persist during the transition to adulthood, with autistic adults from racial and ethnic minority groups experiencing a number of challenges,…December 2020Mental/Behavioral Health
- This special webinar series explores how climate change affects low-income people, Black, Indigenous, Latinx, people of color and other people who are at increased risk due to climate change. In addition, presenters will suggest what is needed to prevent illness, disability, and death from climate change-related conditions among these and other Connecticut residents. Each webinar was held for one…December 2020
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